ADVOCACY & JOINING HANDS TO MAKE A DIFFERENCE
By: Geri Barish - Hewlett House (Cancer Resource)
Getting the word out is vital when it comes to supporting our community in the fight against cancer. Part of the search for answers is learning how to assess your own life - including your history, the area where you live, what you eat, what you breathe and your genetic blueprint. This may lead to identifying any kind of cancer in the family.
Staying vigilant in understanding how cancer happens and how it affects us and our families is the key to awareness. Advocacy is also about supporting one another. As we wait for the cure, we also need to live a full life- this includes staying proactive with our health and staying in touch with the latest solutions. There's a lot more work to be done- and because we are fighters, we have to keep asking questions. Look at your environment- get genetic testing for gene mutation in your lineage, don't ignore checkups- find out if you have any risk factors. That's where education and research comes together. And if you've had cancer already, please don't think it won't come back. Recurrence (or re-occurrence) is a real term- and when it happens, it can come back with a vengeance.
Medical research has identified the major reasons why cancer recurs. A widely reported cause for this is attributed to a deficiency in treatment performance. [2] This means the therapy induced did not successfully remove or kill all of the cancer cells, possibly due to the patient's level of drug resistance. During treatment, Cancer cells can enter a dormant state to protect themselves from treatment and other stimuli. Over time, these dormant cells can reactivate. The cause of this may be a spike in chronic stress or the release of toxins from oxidative stress from environmental factors like smoking or repeat exposure to reactive chemicals. [3]
FOR IMMEDIATE RELEASE:
8/6/2024- Dr. Robert Bard (Bard Diagnostic Imaging) and Cheri Ambrose (President of the MBCGA / Male Breast Cancer Global Alliance) officially launched the RECURRENCE DETECTION SCANS program- a life-saving diagnostic program in support of recurrence prevention.
Program developer Dr. Lennard Goetze spearheaded this plan in 2019 during the launch of the "FIGHT RECURRENCE" educational program with the NY Cancer Resource Alliance. Under a collaboration with the AngioInstitute, Dr. Goetze aligned with national breast cancer organizations who adopted the Fight Recurrence campaign. In the summer of 2024, a partnership with Ms. Ambrose was officially forged with a clinical blueprint for a postop diagnostic scanning program to monitor possibilities of cancer recurrence. "Getting checked for breast cancer has been an uphill battle for anyone- but it's equally important to not get complacent after surgery... saying 'cancer free' is an ideal that does not apply to everyone."
Since the inception of his practice in 1972, Dr. Bard has been a staunch supporter of the use of the 3D Doppler Ultrasound to provide safe and quantitative scans of postop cancer cases. "Due to a significant number of cancer recurrence cases (estimated 40%) either before or after the 5 year 'cancer free' mark, we established a comprehensive and personalized diagnostic strategy for tracking potential RECURRENCE. We also wanted to send a message to maintain proactive vigilance after surgery."
One of the recognized voices for Male Breast Cancer awareness was Mark Futterweit, whose interview in the 2019 WBAB episode "Men DO Get Breast Cancer!" emphasized that he got breast cancer TWICE. This became the launch pad for the Male Breast Cancer Global Alliance and for Cheri Ambrose to be one of the first organizational partners to go national with Dr. Bard's message about proactive monitoring.
Nancy Novack, founder of NancysList.org, a major online cancer resource is a supportive backer of both Dr. Bard's cancer imaging practice and the MBCGA. She is an ovarian cancer survivor as well as a primary voice for the "Fight Recurrence" project. "Living with cancer is about ADVOCACY and AWARENESS ... and maintaining regular checkups, both before treatment and after. We must be informed and wisely active regarding the tools of recurrence detection and survivorship."
Talks with the American Breast Cancer Foundation and other national cancer organizations are underway to join the FIGHT RECURRENCE educational campaign in underserved communities. AngioInstitute outreach coordinator and research director Dr. Noelle Cutter says “In the cancer world, we see recurrence to be so prevalent and often arises with a vengeance – this detection program needs to be a default solution after every cancer procedure… I echo Dr. Bard who instills continued monitoring as a preventive measure!”
RECURRENCE PREVENTION FROM A 3-TIME CANCER SURVIVOR: VANESSA SILVA
I can remember crying- then saying, "Okay, you need to get yourself together. There's options. They said it was at stage zero. It's not a death sentence. We're going to do what we have to do... but you're probably going to be BRCA2 positive, as well." The battle for me started with chemotherapy- but not radiation. In a matter of weeks, they realized the cancer was more aggressive than they thought, and it wasn't at stage zero after all because it already had gone to the lymph nodes.
RECURRENCE: PART 1
During the treatment process, I pushed to do my part and changed the way I lived starting with the way I ate. I exercised, I stopped eating meat and I did everything by the book ... and sure enough, I was told I was cancer free!. So after five years, I felt it was safe to go back to old habits and eat the things I missed the most – including meats. I was still working out, but admittedly, junk food managed to creep its way into my system.
My cancer came back after roughly eight years.
This time, I was angry, because I felt like I did everything I needed to do. I did the chemo. I honestly didn't believe my eating would have brought my cancer back. They recommended four treatments of chemo, but this time it was stronger. For the first time, I had to take Taxotere, and then, this time, I had to do the AC.
I looked at my husband and said, "This is a joke. I feel like I'm being punked… we're going to do this again!" I started the first chemo treatment and became really, really sick. I was hospitalized for a week. I could not tolerate the chemo's side effects; it was way too strong. And I told them, "What are my options, because I can't do four treatments with the way I was feeling." It really hit my body hard- so they redirected me to 6 weeks of radiation treatments.
So again, I stopped eating meat, stopped sugar, went back to the juicing, I did my daily routine of walking (I live by Central Park, so I would walk the reservoir). I was religious with my health especially during and even after I was done with the treatments.
But a year later, I kept up with my self exams to make sure there were no lumps, and then ended up finding another one - this time on the right side! Very small again, underneath my breast - and just like the last one, it started to grow.
For the third time, the cancer had come back.
Once again, I underwent surgery to remove the cancer. It did not go to the lymph nodes, so they didn't recommend chemo this time around, but I had to do radiation again for six weeks. This was my reality. I had cancer in 2007- then again in 2014, and then the cancer came back in 2016.
What was confusing to me was that this time, I was so diligent about prevention- not having any meat, and constant juicing and exercising. I feel as if my body produces cancer cells much faster than a regular person. I just have to be more vigilant with checking myself.
I try to make sure that I'm stress-free, that I don't put myself in situations that would make my immune system just crash. My doctor and I are both very diligent about checkups and often do sonograms at the slightest concern. I see my breast surgeon every six months. And now, she's finally pushed it to a year, so I'm so happy with that.
FOOD 101: GOING 'CLEAN' AND ORGANIC
I think, meat plays a huge part in all of this because of the hormones that are being injected into them. I do my best to buy products that say Non-Hormones, No Antibiotics, etc., however, how much of that is true. I was convinced that I needed to stop eating meats all together and to stop putting all of these processed products into my body and start eating a much healthier diet.
Organic and gluten-free was the way to go for me! I don't drink dairy milk anymore only almond milk. I'm really trying NOT to introduce the bad stuff to my children. Two of them are already grown, I really try to give my youngest one ZERO red meat except maybe once a month. Sometimes, it's turkey or chicken, but even that, we've really pulled away from. I try not to be as restrictive with them because they're young, and they should make their own decisions later, however, I want them to be knowledgeable of what they put into their bodies. Zero sugar is hard to do but we try to stay away from candy, donuts and pastries.
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